Thursday, August 30, 2012

Frozen Yogurt

Needless to say...we are really enjoying the changes Calista has been able to make.  Some changes are yummier than others!

Monday, August 27, 2012

A little baseball, a little rain and mint chocolate chip.

My husband, my father-in-law and my girls enjoyed a major league baseball game yesterday.  Yes, there was a rain delay.  No, the Rangers did not come out on top.

But...Calista had mint chocolate chip ice cream!!  And that (as all you faithful readers know) is AMAZING! Even more amazing for me was the ability to let her go, to relax and know she would be safe.

Without Dr. Wasserman and Dallas Allergy Immunology, none of this would have happened.  Without a mom sharing her family's story and giving me the name of doctor, none of this would have happened.  Call this office.  Call another doctor.  Call someone.  Desensitization works.  It isn't easy.  Others have had many more setbacks than we experienced.  It is worth it.  It is worth the effort to make your child safer.  It is worth the time, the travel, the money to see your little girl enjoy an ice cream at a baseball game in a cute little baseball cap.



Again, I'm not a doctor.  I am a mom.  I am the self-appointed peanut police.  I knew nothing about peanut allergy until Calista's diagnosis.  After that point, I learned everything I could and shared the information with every person that would listen (and some who wouldn't).  My daughter is safer today than she was in March before she began desensitization.  Her life is forever changed.

Friday, August 24, 2012

Increase Day!

162 days after her Day One, we are waiting in the office for an increase to 12 peanuts twice a day. From the tiniest fraction of a peanut, to 24 each day in less than six months. Wow!

"Wow" seems like such a silly word and I know I've used it a thousand times in this blog and in conversations about desensitization. But I cannot convey the life changes we have experienced - I just can't find another word.

When Calista was diagnosed (before her first birthday), I wanted to buy a bubble and stick her inside. The allergist told us that her next exposure to peanuts could be life-threatening and complete avoidance of the allergen would be the only way to keep her safe. I really was afraid of everything. The more I read, the more worried I became. You learn about cross-contamination, the dangers of peanut residue on surfaces, the products that have peanut or are processed in a facility, and on and on. We have learned that nuts can be found in the most random things - seed packets, tomato paste, etc.

You learn to read labels, wipe surfaces, educate everyone around about EpiPens. You see the fear in a teacher's eyes when you try to explain this -- when you ask them to teach your child, care about your child, show them the right way to treat others and oh, keep a lookout on any food, treats, etc. and be ready to save her life (if another student's lunchbox contains a bomb).

Next week, we will visit Dallas Allergy for a 24 peanut challenge. After that, she will be on Maintenance. Maintenance will require her to eat eight peanuts a day. But, she will be free to eat as many additional peanut products as she wants.

That means playdates will be okay, ice cream shops will be okay, cupcakes at school will be okay.

Wow!


Saturday, August 18, 2012

Putting it all in perspective.

70 months since Calista was diagnosed.

22 appointments at Dallas Allergy.

22 days of school & day camp missed.

22 days of work missed.

4,840 miles driven.

1 little girl's life changed forever.

Friday, August 17, 2012

155 days in

155 days ago, Calista and I arrived at Dr. Wasserman's office to begin her Day One of desensitization. Today, we will increase to 10 peanuts every 12 hours.

She started 1st grade yesterday. We didn't need a peanut free classroom. We don't need a peanut free table. We don't have to spend every second waiting for the phone call about her having a reaction. Now, the school secretary may get a nice response when she calls me :) I always worried and almost hit panic mode every time the school phone number showed on my phone.

I'm so thankful we found Dr. Wasserman. This treatment has changed our lives in so many ways!

Thursday, August 9, 2012

Back on track and an exciting first!

Tomorrow, we visit Dr. Wasserman to get back on our regular increase schedule. We enjoyed our vacation, but it's time to get back to business. Calista should increase to eight whole peanuts tomorrow.

While we were on vacation, Calista had her first taste of gelato (and she enjoyed it so much that we make a second trip the next night). Calista was diagnosed as an infant, so she has never been to an ice cream shop. A joyous occasion for our entire family!!